All posts by Kgregory

Nocturnal Seizures


I myself have been not knowing what’s going on with me. All the symptoms, new and old seem to fall under the category of the “Norm” of Autonomic Disease and Dysfunction. But this last year I have noticed waking up having what feels like a seizure, I can actually feel like my brain shaking, it feels like my chest in shaking, my nerves and muscles in my hands are moving, I get jerky muscle movements as well. It’s been scary so to be honest I haven’t said anything as it was happening just once in a while and every time you go to the Doctor that just look at you like your nuts!

So instead I emailed Stanford asking my Doctor and telling him of some worsening symptoms I was experiencing and this seizure thing happening, because its happening more now. Some times 3 times a night, then of courses going back to sleep is not going to happen, the fear of going back to sleep keeps me awake.

So after writing him and his quick response to get into the office right away, it scared me a little bit. Well a lot. So what do I do, what I tell people not to do is go on the internet. Okay, it happens more then you think, and most people don’t know they have them. but I do. Because of the different stage of sleep I’m in, I am aware of it which then makes it worse.

Good news is there are medications to control seizures, epilepsy and if those don’t work you can have a device put in your chest that sends electrical shocks up to your brain to try to keep you from having them all together. To be honest, I am so tired of drugs, there site effects, I ‘d rather have the device put in. I know that sounds crazy but I have already tried a lot of the epileptic meds due to migraine headaches and they made me very sick.

So that being said there are several reasons for having these seizures, one forget medication, alcohol withdrawal or drug withdrawal, lack of sleep, insomnia, misfiring in your brain. or previous drug use, well I have never tried drugs unless given by a Doctor, I don’t really drink, I do have insomnia and I can tell you I have my wires misfiring in my brain. I can tell something is wrong, I can feel it. I am so tired. I can sleep 20 hours a day everyday. my brain fog is so bad. I forget from one thing to the next. Head pressure galore. So I am off to Stanford. Hopefully since there is no cure, symptom control is all I can expect.

So hopefully this visit will be a new beginning for symptom relief.

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Misophonia!!!!!

Have you ever heard of this Brain Disorder. People are driven to fight and flight mode, anger, anxiety, uncontrollable behavior in a negative way because of sounds. Sounds that are in the category is chewing gum, smacking, slurping, chewing food, voices, walking in certain shoes, playing with plastic, water dripping could be any sounds even someone’s voice or even a swallow of water. It doesn’t just irritate you it actually causes you to not be able to think before actions, whether you yell, throw a tantrum, leave a room, some people become closed in there home, to avoid the sounds, there is no cure but there are exercises you can do to help the symptoms but very few Doctors treat this disease, let alone have ever heard of it. There are online tests to see if you have this disease and this disease is described as a neurological disorder and the brain’s wiring not working correctly. I found a clinic that specializes in this disorder and it is a disorder not in someone’s head, it is recognized by the neurological society as a disease. You can even take a class through the Brainclinic.com Dr. John Hatch. There are located in Utah but if you want to take a class with out having to go to Utah on there site they offer a class for a small fee to not only help you understand you what’s going on but also teaches your exercise that can help you deal with your disease. I can remember my dad going absolutely go nuts at the table if her heard anyone chew, slurp, swallow, he would get so angry and other videos I have watched the patients being diagnosed recognized a family member to have had the same sensitivities. If you find your self having any of these systems you can test yourself online. Again, the Brainclinic.com in Utah offers a class online, it was less than $50.00 for all the education and exercise’s to help you cope. There is a youtube link below to watch the first video. Copy and paste the link below to watch the Video.

https://youtu.be/BDbLNisb0Js

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Cervical Cancer

Cervical cancer staging helps to determine the disease prognosis and to select an appropriate treatment strategy.  FIGO (International Federation of Gynecology and Obstetrics) is the most commonly used staging systems for cervical cancer. Following table describe the characteristics of ovarian cancer according to different stages: The best way to prevent Cervical Cancer is by limiting your partners, getting your annual exams, having your pap’s done as your guidelines for your age recommend. Or If you have a new partner, Also making sure your Doctor is doing the HPV test on or off your pap and follow the follow the guidelines again by your age. Your Doctor will know this information. The worst thing you can do is ignore a abnormal result, Being tested regularly makes a different is a successful treatment, less treatment. If you don’t get your results from your Doctor’s office call and ask, Sometimes results can be lost. If you don’t feel comfortable with your Doctors decision on treatment, make a appointment and discuss with he or she, If you are still uncomfortable , seek a second opinion. If you choose to not take your Doctors recommendations, they can terminate your care, or you can ask to sign a release that you refuse treatment. If you have been told your Doctor you know longer need pap smears, you should still see your Doctor for annual pelvic exam. Or if you get a new partner even being released from Pap Smears, let your Doctor know.

FIGO StageDescription
IThe primary tumor has invaded into deeper cervical layer but is present only in the Uterus. It might or might not have spread to nearby lymph nodes without any spread to distant body parts.
IAThe cancer cells are visible only under a microscope. Cervical stromal invasion </=5.0 mm in depth and horizontal epithelium invasion </=7.0 mm. It might or might not have spread to nearby lymph nodes without any spread to distant body parts.
IA1The cancer cells are visible only under a microscope. Cervical stromal invasion </=3.0 mm in depth and horizontal epithelium invasion </=7.0 mm. It might or might not have spread to nearby lymph nodes without any spread to distant body parts.
IA2The cancer cells are visible only under a microscope. Cervical stromal invasion >3.0 mm but </=5.0 mm in depth and horizontal epithelium invasion </=7.0 mm. It might or might not have spread to nearby lymph nodes without any spread to distant body parts.
IBThe cancer cells are visible without a microscope or those visible only under a microscope but tumor size larger than T1a2. It might or might not have spread to nearby lymph nodes without any spread to distant body parts.
IB1The cancer cells are visible without a microscope and tumor size </=4.0 cm. It might or might not have spread to nearby lymph nodes without any spread to distant body parts.
IB2The cancer cells are visible without a microscope and tumor size >4.0 cm. It might or might not have spread to nearby lymph nodes without any spread to distant body parts.
IIThe cancer cells have invaded beyond the cervix and the uterus but haven’t spread to the pelvic wall or to the lower part of the vagina. It might or might not have spread to nearby lymph nodes without any spread to distant body parts.
IIAThe cancer cells have invaded beyond the cervix and the uterus but haven’t spread to the parametria (tissue next to the cervix). It might or might not have spread to nearby lymph nodes without any spread to distant body parts.
IIA1The cancer cells have invaded beyond the cervix and the uterus but haven’t spread to the parametria and tumor size </=4.0 cm. It might or might not have spread to nearby lymph nodes without any spread to distant body parts.
IIA2The cancer cells have invaded beyond the cervix and the uterus but haven’t spread to the parametria and tumor size >4.0 cm. It might or might not have spread to nearby lymph nodes without any spread to distant body parts.
IIBThe cancer cells have spread to the parametria. It might or might not have spread to nearby lymph nodes without any spread to distant body parts.
IIIThe cancer cells have spread to the pelvic wall or to the lower part of the vagina. It may have blockage the ureter causing hydronephrosis. It might or might not have spread to nearby lymph nodes without any spread to distant body parts.
IIIAThe cancer cells have spread to the lower part of the vagina. It might or might not have spread to nearby lymph nodes without any spread to distant body parts.
IIIBThe cancer cells have spread to the pelvic wall. It may have blockage the ureter causing hydronephrosis. It might or might not have spread to nearby lymph nodes without any spread to distant body parts.
IVAThe cancer cells have invaded beyond the pelvis wall into the bladder or the rectum. It might or might not have spread to nearby lymph nodes without any spread to distant body parts.
IVBThe cancer cells have spread to distant body parts such as distant lymph nodes, lungs, bones, or liver.


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Just what is a invisible illness?

What are Invisible Disabilities?
Invisible Disability, or hidden disability, is an umbrella term that captures a whole spectrum of hidden disabilities or challenges that are primarily neurological in nature. Invisible disability, or hidden disability, are defined as disabilities that are not immediately apparent. Some people with visual or auditory disabilities who do not wear glasses or hearing aids, or discreet hearing aids, may not be obviously disabled. Some people who have vision loss may wear contacts. A sitting disability is another category of invisible impairments; sitting problems are usually caused by chronic back pain. Those with joint problems or chronic pain may not use mobility aids on some days, or at all. Although the disability creates a challenge for the person who has it, the reality of the disability can be difficult for others to recognize or acknowledge. Others may not understand the cause of the problem, if they cannot see evidence of it in a visible way.
People with some kinds of invisible disabilities, such as chronic pain or some kind of sleep disorder, are often accused of faking or imagining their disabilities. These symptoms can occur due to chronic illness, chronic pain, injury, birth disorders, etc. and are not always obvious to the onlooker.
Invisible Disabilities are certain kinds of disabilities that are not immediately apparent to others. It is estimated that 10% of people in the U.S. have a medical condition which could be considered a type of invisible disability.
Nearly one in two people in the U.S. has a chronic medical condition of one kind or another, but most of these people are not considered to be disabled, as their medical conditions do not impair their normal everyday activities. These people do not use an assistive device and most look and act perfectly healthy.
According to the Americans with Disabilities Act of 1990 (ADA) an individual with a disability is a person who: Has a physical or mental impairment that substantially limits one or more major life activities; has a record of such an impairment; or is regarded as having such an impairment.
About This Image: Woman with migraine sitting on a bed holding a white mug with her head resting on her hands and knees.
Generally seeing a person in a wheelchair, wearing a hearing aid, or carrying a white cane tells us a person may be disabled. But what about invisible disabilities that make daily living a bit more difficult for many people worldwide
Invisible disabilities can include chronic illnesses such as renal failure, diabetes, and sleep disorders if those diseases significantly impair normal activities of daily living.
For example there are people with visual or auditory impairments who do not wear hearing aids or eye glasses so they may not seem to be obviously impaired. Those with joint conditions or problems who suffer chronic pain may not use any type of mobility aids on good days, or ever.
Another example is Fibromyalgia which is now understood to be the most common cause of chronic musculoskeletal pain. Sources estimate between 3 and 26 million Americans suffer from this hidden condition.
Other Types of Invisible Disabilities
Chronic Pain: A variety of conditions may cause chronic pain. A few of those reasons may be back problems, bone disease, physical injuries, and any number of other reasons. Chronic pain may not be noticeable to people who do not understand the victims specific medical condition.
Chronic Fatigue: This type of disability refers to an individual who constantly feels tired. This can be extremely debilitating and affect every aspect of a persons every day life.
Mental Illness: There are many mental illnesses that do qualify for disability benefits. Some examples are depression, attention deficit disorder, schizophrenia, agoraphobia, and many others. These diseases can also be completely debilitating to the victim, and can make performing everyday tasks extremely difficult, if not impossible.
Chronic Dizziness: Often associated with problems of the inner ear, chronic dizziness can lead to impairment when walking, driving, working, sleeping, and other common tasks.
People with psychiatric disabilities make up a large segment of the invisibly-disabled population covered under the Americans with Disabilities Act of 1990.
Invisible disabilities can also include chronic illnesses such as renal failure, diabetes, and sleep disorders if those diseases significantly impair normal activities of daily living. If a medical condition does not impair normal activities, then it is not considered a disability.
96% of people with chronic medical conditions live with an illness that is invisible.
Many people living with a hidden physical disability or mental challenge are still able to be active in their hobbies, work and be active in sports. On the other hand, some struggle just to get through their day at work and some cannot work at all.

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Remedies to treat Insomnia by lifelolo

8 Home Remedies to Treat Insomnia
September 29, 2016Komal Karnani

In this fast growing era, everyone has a lot of pressure and tension irrespective of the age, career, or financial situation. Hypertension is the basic cause behind less sleep or insomnia. Though tension cannot be removed completely but this problem “insomnia” can be treated to get a sound. Some home remedies can help well than medicines to treat insomnia. Try out the following home remedies to treat insomnia:
1. Listen up music to sleep
Slow and soft music is the best way to keep your mind calm and relaxed. Listening music is a very common way to get easy sleep and divert your mind from entire tiredness. Constant and soft music reduces the frequency of thoughts in mind and makes our mind for falling asleep.
2. Drink tart cherry juice for sound sleep
This natural sleep aid contains one cup of tart cherry juice and the half cup of water. It contains a kind of amino acid which ultimately converts into melatonin that governs the sleeping system in the body. Other than this, one can eat cherries also to increase melatonin in the body.
3. Lemon balm for insomnia
Lemon balm not only lifts the mood but also provides relaxation to the tired body. It calms your mind and promotes mental as well as physical health. Add an equal amount of dried lemon balm and dried chamomile in fresh warm water. For taste add honey in the mixture and take it before going to bed.
4. Do some exercise to sleep
Exercise is the best way to energize your body and keep it fit. It is an idea to burn the calories and feel better. But make a note, it is advisable not to do exercise before going to bed, as it may make you feel awake for some more time.
5. Warm milk for sound sleep
Sip a full glass of warm milk 30 minutes before going to bed. Warm milk has tryptophan acid which works well to wind up your mental activities and provides relaxation. After boiling the milk, bring it to the normal temperature and consume it every day.

6. Meditate for few minutes
Mediation is a way to relax your mental activity. It promotes calmness and peace in the body that helps in getting sound sleep. You can also try acupuncture before going to bed to relax your body.
7. Sleep well with catnip
All you need is one or two teaspoon dried catnip to sleep well. Add 8 to 10 ounce boiling water in the catnip powder. For taste, you can 1 spoon honey too. Before bedtime, drink this mixture regularly.
8. Magnesium for insomnia
This mineral supplement promotes the nervous system of the body. Magnesium plays a vital role in smooth functioning of GABA receptors and ultimately, prepares your mind and body to fall asleep.
A decent and sound sleep is very important for a healthy life. Insomnia is like a real nightmare that one can face. Above-mentioned simple home ideas can help you in your bedtimes. Sleep well and stay healthy!

For more great information you’ll want to check out lifelolo, and to the left of the page next to resources click on lifelolo and you’ll be at there site Don’t forget to subscribe!!!!

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When someone is changing right in front of your eyes !!!!!

When you have a loved one and you start to notice different behaviors such as if they are usually easy going, kind hearted, gentle, would never hurt you mentally and or physically, then in a fast amount of time they become angry, mean, temper tantrums, violent mentally, You cant put your finger on it but you know something is wrong, They normally were right on top of everything bills, what ever needed to be done and instead even items on a grocery list are not there, bills not getting paid, loosing important papers, loosing medications just picked up at the pharmacy.

When asking what’s going on, You receive a very defensive person, they may kick you out of the house, or their bedroom, they become isolated, I feel this is out of depression and fear of what is happening to them. They know something is not right, they may sleep more, drink more, have more pain specially in the head, emotional episodes that were confusing . Behavior that makes them not appropriate in public, They fight you on everything,

Finally they may if a strong person may come to you and cry, like a baby, admitting they need help, they don’t know what is wrong, but they are forgetting things, not just normal age type things, like where they are, where they are going, after you give directions you still end up at the wrong place, they learn to adapt and how to cover up what’s happening. But still defensive, they can become paranoid, pace the floor, urinate in their pants and can’t hold it anymore, accuse you of things out of paranoia.

Their eating habits may change, they may eat more or less, or in this situation eat more, hide food, keep it in their car or locked in their room. You ask, they don’t have any, a full box of donuts gone no one else had any, almost like they don’t realize there doing it and deny it.

Even if they trust you enough to ask for help, its very important to their self esteem you don’t put them down and let them know you will always be there with them and won’t leave them. But then the next day they can transfer money out of the bank, take your keys, anything to remain in control over there life that they so eagerly want to hold on to.

If you feel well maybe it’s just me, or a phase, but other family members say things like, is so and so ok? Why? He is looking like he’s not here with us at the table, like vacant. Or I saw this person sitting on a stool starring off into space and wasn’t really there. Or finding them doing odd things like falling asleep sitting straight up like they were awake but asleep, or watering the pavement saying they are watering the grass.

It could be numerous things, Dementia, Alzheimer’s, a Traumatic brain injury, stroke, TIA’s, personality disorder, medications, so you must offer support the biggest fear they have is being alone, so you must reassure them you can be trusted and are their for them no matter what, other wise they won’t tell the truth of what’s going on. Brain Atrophy and alcohol and or past alcohol can escalade these symptoms, Smoking pot can also escalate these symptoms specially if used along length of time.

So If you notice anything of these symptoms, Please with out putting someone down, or making them feel bad, Be there, be strong for them even if you cry in another room.

If you notice these changes and happens in a quick amount of time like 6 months, you need to get them into a Neurologist, get a MRI, have cognitive thinking testing, and if it a reputable place they will ask the loved ones what they have noticed because they will not indulge the information to the Dr out of fear of a diagnosis. You have to be the person who steps up and recognizes there is something wrong, you can’t still your head in the sand. The sooner for a diagnosis, sooner for treatment and some Brain issues can be reversed or slowed down. So it’s not a time to take lightly.

If a accurate diagnosis is made its important how you and your loved ones can find out what you can do to help this person to keep them at their best, if they are tired, let them sleep, if they can’t get something done, oh well, learn to make small things just that! But also helping your loved one is the best gift you can give them.

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What exactly is POTS!!!!!!!

WHAT IS POTS?

Dysautonomia is an umbrella-term used to define conditions caused by a malfunctioning autonomic nervous system. Postural Orthostatic Tachycardia Syndrome (POTS) is a form of Dysautonomia. POTS is most often seen in women of child-bearing age but can and does affect people of all different ages, genders, and races. Just like all chronic illnesses, the degree of severity can range from mild to completely disabling. Approximately 25% of patients with POTS cannot work, go to school, or keep up with daily tasks due to their condition. The autonomic nervous system is responsible for every bodily function you do not have to think about at this very moment. You do not have to tell your heart to beat, nor do you have to instruct your lungs to inhale or exhale, as both are done automatically. With POTS, there is dysfunction with these automatic functions. The autonomic nervous system is responsible for so many bodily functions which is why no two patients with POTS are ever exactly the same.

The symptoms seen in POTS can vary greatly but an increase in 30+ bpm (40+ in adolescents), or a HR that goes above 120bpm, within the first 10 minutes of standing is seen in all patients. This increase in heart rate is responsible for the “T” in POTS: Tachycardia. Tachycardia is defined as an abnormally high heart rate. The average resting heart rate is anywhere from 60-90 (some athletes experience bradycardia, or low heart rate). This average resting heart rate would remain the same when going from sitting to standing in a healthy individual, or would change slightly. With POTS, the heart rate increases as the body’s way of trying to compensate for the blood that is starting to pool in the lower extremities. Our heart rates increase to try to work extra hard to pump our blood back to our heads, with little success.

This increase in heart rate is diagnostic criteria for POTS and is seen with or without a decrease in blood pressure. It is a common myth that patients with POTS always have low blood pressure but that’s not accurate. In fact, the increase in heart rate can be accompanied with a stable blood pressure, a drop in blood pressure, or even an increase in blood pressure. Orthostatic hypotension is a different form of Dysautonomia in which the blood pressure drops when standing but the heart rate remains the same.

Although POTS is often characterized as a fainting disorder, it can more accurately be described as a presyncope (the feeling of lightheadedness, dizziness, and confusion experienced right before one faints) condition. In fact, fainting and a decrease in blood pressure are not diagnostic criteria for POTS.
POTS was termed in 1993 but several medical and historical documents describe patients with POTS symptoms under different diagnoses including “soldier’s heart.” Current research is suggesting that POTS is an autoimmune condition. An autoimmune condition means that the body’s immune system is attacking the body itself instead of intruding threats. More research is necessary in order to understand more about POTS and eventually find a cure!

For me personally, I have experienced all the symptoms, but first started with Vertigo and ear pain, hearing loss, visual changes, dizziness, nausea vomiting, Took 57 Dr’s to correctly diagnose me correctly, Started with autoimmune disease of the ear, then it seemed it snow balled out of control as if the autoimmune disease was attacking my Brain and then my body. I had Chemo with zero results and IVIG which is intravenous immunoglobulin for 9 months 5 days a week 7 hours a day. Didn’t work! So as of now there is no cure just symptom control.

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