Read more: Her Brain Was On Fire: A Neuroinflammation Story http://www.cortjohnson.org/blog/2015/07/24/her-brain-was-on-fire-a-neuroinflammation-story/
So, You Suffer With Headaches…
Our office has very high success in treating headache patients. Our success in headache treatment is accomplished drug free and without invasive surgery. We have had a myriad of success treating patients with migraine headaches as well as tension headaches, and chronic daily headaches. In fact, the vast majority of our patients have failed with multiple drug therapies prior to contacting us, typically as a last resort. If this sounds like you or someone you love, you should consider calling our office for a no obligation FREE consultation. You can find out about our migraine treatment and treatment for tension headaches before making any commitment to treatment.
For those of you wishing to know more regarding various causes of headaches, read on…
Tension headaches represent one of the top three reasons patients consult their doctor, (with vertigo and back pain making up the other two). It is one of the most costly diseases because of its very high prevalence. Tension headaches are the most common type of headaches. It has also attached the synonymous name of stress headaches.
The International Headache Society defines tension headaches more precisely and differentiates between episodic and chronic types. The following is a modified outline of the IHS diagnostic criteria:
Episodic Tension Headaches
- At least 10 previous headaches fulfilling the following criteria; number of days with such headaches fewer than 15 per month
- Headaches lasting from 30 minutes to 7 days
- At least 2 of the following pain characteristics: Pressing/tightening (nonpulsating) quality of headaches
- Mild or moderate intensity (may inhibit but does not prohibit activities)
- Bilateral location, (headache on both sides of head)
- No aggravation of headache from climbing stairs or similar routine physical activity
- Both of the following: No nausea or vomiting associated with headaches
- Sensitivity of light and sound is absent or only one is present with headaches
- Secondary headache types not suggested or confirmed
Chronic tension-type headaches
- Average headache frequency of more than 15 days per month for more than 6 months fulfilling the following criteria
- At least 2 of the following pain characteristics: Pressing/tightening (nonpulsating) quality of headaches
- Mild or moderate intensity headaches, (may inhibit but does not prohibit activities)
- Bilateral location, (headache on both sides of head)
- No aggravation from climbing stairs or similar routine physical activity
- Both of the following: No vomiting associated with headaches
- No more than one of the following: nausea with headaches, avoidance of light and sound with headaches
- Secondary headache types not suggested or confirmed
Although formerly conceived as muscular contraction headaches, the more likely cause of these headaches is believed now to be abnormal neuronal sensitivity and pain facilitation, not abnormal muscle contraction. Headaches are not related directly to muscle contraction, and possible hypersensitivity of neurons in the trigeminal nucleus caudalis has been suggested.
In the US: Tension headaches are the most common type of headaches, and women are more likely to be affected with headaches than men.
History: Tension headaches are characterized by pain that is usually mild or moderate in severity and bilateral in distribution. Unilateral head pain may be occasionally experienced as well, however. Headaches are commonly reported as a constant, tight, pressing, or band-like sensation in the head.
Common to Tension Headaches
- The majority of these headaches last less than 24 hours.
- Headache pain differs from the typical pulsating/throbbing quality of migraine headaches.
- Prodrome and aura prior to headaches are absent.
- The deep steady headaches differ from the typical throbbing quality of migraine headaches.
- Occasionally, the headaches may be throbbing or unilateral, but most patients do not report sensitivity to light and sound, or nausea, which commonly are associated with migraine headaches.
- Some patients may have neck, jaw, or temporomandibular joint, (TMJ), discomfort or dysfunction.
- Migraine pain may be localized to one side of the head, behind the eye, the back of the neck, or about the face. The pain is associated with nausea and sometimes vomiting. Patients become sensitive to light (photophobia), sounds, (phonophobia), and certain smells (osmophobia). Intermittent dizziness may occur. Some patients, called migraineurs, may develop an “aura,” that is, a feeling that comes on before the headaches begin. These auras may be associated with visual changes, such as spots, (scintillating scotomas), tunnel vision, or wavy lines, (fortification spectra). The headaches may last up to three days and may occur several times per week or as infrequently as once or twice a year. Women are more prone to migraine headaches than men.
Cluster headaches are given their name based on the fact that the attacks of headache pain occur in clusters that may last several weeks to months. The head pain is agonizing and usually affects one side of the face, involving severe pain behind one of the eyes with associated nasal congestion and runny nose. Oddly, men tend to get these types of headaches more frequently than women.
Where Do I Begin?
Before you seek any treatment approach to your headache pain, it would be wise to make sure that the underlying cause of your headaches is correctly diagnosed. Evaluations for your headaches typically involve your PCP, (Primary Care Provider), however, examination by an appropriately trained neurologist is wise. Our office specializes in extensive neurologic evaluation of each patient prior to undertaking any headache treatment regimen. It is important that you have your condition(s) properly diagnosed so that you do not waste valuable time should the underlying cause of your headaches be serious and/or progressive, or, should such headache treatment be contraindicated for any reason. Additionally, any headache treatment that you receive, be it from an allopathic, chiropractic, or other integrative approach, will likely not be as beneficial if it is not diagnosis directed. The fundamental healing axiom of “first do no harm” must be a guiding principle whenever a medical provider encounters a patient. Patients seeking any form of manipulation should do their homework on the proposed providers and techniques used in order to find competent practitioners capable of performing such procedures as safely as possible. The risks and benefits must be clearly discussed. Just as one chooses their surgeon carefully, so too must a patient evaluate any practitioner who would attempt manipulation. So too should a patient scrutinize any proposed drug therapy headache treatment, or other drug treatment for that matter, without a logical accompanying diagnosis.
During the course of any headache treatment, it would be extremely wise to maintain a log of temporal course and severity of your headaches. Rate your headaches from 1-10 on severity, and mark a calendar when you have a headache with the severity rating and also how long it lasted. This will later prove invaluable when determining the benefits, if any, of your headache treatment, as you will have something to reflect back on to demonstrate reduction of severity or frequency of the headaches.
Free E-Consultation Right Now!
Because of the duration of examination and complexity of treatment that we offer, we are naturally limited to the number of prospective patients which we can take into our programs. We therefore only accept patients whom we truly believe we can help. If you would like to be considered for treatment, please start by filling out the Headache consult form, (the password is help), and submitting it by email to our office. The doctor will review it, make a determination as to candidacy for headache care, and we will call or email and notify you as quickly as possible. If we do not have immediate openings, you may be placed on a waiting list and we will call you when an opening occurs. We appreciate your patience in this regard, but we give each patient individual and uncompromised attention which allows us to continue to maintain optimal outcomes.
If you would like to schedule a free in office consultation with the doctor to discuss your headaches, or just have questions, please contact us using the form on our Contact Page. Lastly, we recommend reading our Guest Book page to see what other patients have had to see regarding their treatment with Dr. Scopelliti.
References available upon request
Dr. Scopelliti is a Functional Neurologist in Monmouth County NJ.
|I had to add a second post regarding this site. It is such important tool not only for you but to help others by your health information for research purposes. You can communicate with others that have your same illness or use the history tool and health record to keep track of your own health records, then print it out to take to your Doctors appointment to share the information which is a win win on both parties, Helping your Doctor help you . It’s a wonderful site.|
Ryan Adams Discusses Prolific Career and Coping With Meniere’s Disease on ‘CBS This Morning’
Adams calls the affliction “an interesting thing to have and be me”
Ryan Adams recently turned up on CBS This Morning: Saturday to delve into his career, music, and even a “hearing illness” that made him feel like he “was losing [his] mind.” Speaking to Anthony Mason, the 2015 Grammy nominee described his latest period of prolificacy (“It’s cool. It feels like my soul is full and it’s overflowing and I’m taking just dictation from what I can get from it”) and coping with Ménière’s Disease, an inner-ear disorder that causes spontaneous episodes of vertigo (“[It’s] an interesting thing to have and be me”).
Watch his interview above.
Bowen is now winding down Starbooker, as his hearing loss and balance issues have become more acute. He is preparing for the eventual total loss of his hearing. Holly Bowen has taken over the remaining projects on the company’s calendar and will seek no future bookings or clients. Pollstar spoke with Bowen about his life and career, and about Meniere’s disease.
See the very end of this article for an open letter to the industry from Bowen.
Is Meniere’s disease treatable, or is total hearing loss inevitable?
It comes in varying degrees and attacks people in different ways. With me, it started 20-some years ago out of the blue. I was sitting at my desk and suddenly I got extremely dizzy and nauseous and I thought, “What in the hell is going on?” It took two years or so before I could even get a diagnosis.
At that point, I had it for a while and then it went away. But a few years later it came back, and came back like a freight train. I’ve been dealing with it ever since to the point where I am where I am and facing the facts. You’re never really cured, but some get to the point where it’s kind of in remission. Sometimes they say it’s as if the vertigo part of it and the tinnitus part of it get tired of fighting and kind of go away. But the hearing loss is what it is. There’ve been some pretty famous people who’ve had this from back in history to the present time. I did some poking around and there’s some famous people, including current entertainers, who have it that people don’t know about. Hearing loss is inevitable, especially when it goes bilateral, as mine has. I can be deaf one day and the next day my hearing will be back.
But when it comes back, it comes back a little weaker than before I had the attack. Generally, especially with bilateral patients, it’s almost an inevitable situation that you’re going to end up deaf. The bilateral type is much rarer than the single-sided Meniere’s. I’m not sure why that is, but it’s generally more prevalent to have it on one side than both. Usually it’s the left side, rather than the right side, and women tend to have it more than men.
There is associated dizziness and tinnitus. It could be ringing or whooshing or roaring like freight trains. Then there’s the inner ear pressure. It can be driven by the weather, allergies – the doctors don’t know. Some say if you’ve had a brain injury or even a blow to the head at some time, later on it can trigger Meniere’s. And when I was little kid, I did get hit in the head. Could this have been triggered when I was 13 years old? Did that cause it to happen? Everybody has a different reason. But some people have been able to abate it and come back. Alan Shepard, the astronaut, had it and was grounded but was able to control it with monitoring and medication back in the 1960s.
He got to the point where he was able to go back to the space program and take a second space flight as commander on Apollo 14. He had it, but he was able to control it. Ryan Adams has it, Marilyn Monroe had it. Vincent Van Gogh – you’ll laugh at this but one of the reasons people believe he cut off his ear was because he had Meniere’s on that side and was trying to get rid of the noise and the pressure. Peggy Lee, Emily Dickinson, Les Paul and Kristin Chenoweth have it. She was injured not too long ago because she fell, which is another side effect.
How did you go from acting into the concert business?
I went from theatre, to TV and films, and eventually into radio. From radio, I got into doing radio concerts and promoting. From that, got into booking. That’s how I got to where I eventually ended up. I kind of fell into it. I’d been promoting some concerts and marketing for various venues. I was working with shopping centers, promoting radio shows, worked with a production company in Winston-Salem, N.C., and had a partnership with Jim Brammer, who owns Special Event Services, still a very strong production company. I left that company and went on my own marketing things. Bucky Dame, who at that time was the director for the Lawrence Joel Veterans Memorial Coliseum complex in Winston-Salem, had an opening for booking director/associate director for the coliseum. He asked Jim Brammer if he knew anyone, and he said, “Talk to Bowen.”
You had a long run in Indianapolis before landing at the Sears Centre.
I was recruited by the Indiana Pacers. I moved to Indianapolis and worked for Pacers Sports and Entertainment for the next 10 years as VP of booking and production for them. We built Conseco Fieldhouse and closed down Market Square Arena. Then I was recruited by Ryan Cos. to go to Chicago and take over the Sears Centre. I stayed there until 2010, when it was taken over by the city and management went to Global Spectrum.
After that, you started Starbooker Presents?
At that time, I was contacted by Mike Crum of the Charlotte Regional Visitors Authority. He asked if I’d be interested in starting my own company and coming back to North Carolina. I could lead booking promotions and be an inhouse talent buyer for the CRVA in Charlotte to help them out in booking Bojangles Coliseum and Ovens Auditorium. The timing was perfect so I said yes. That’s how Starbooker Presents was born. My wife and I moved back to Greensboro where most of the family was. I’ve got two sons and our daughter moved back here. I’ve got five grandkids in Greensboro, too.
We were a very small organization, mainly me and my wife. We’d bring in outside contractors as needed depending on what the projects were. The primary focus was on talent buying but we also did consult. I did a lot of consulting for new business development and did a lot of mentoring for general management for venues and marketing. At the same time, we worked with other companies in bid processes. We helped other companies with requests for bids, everything from talent buying to staffing to general management to production, everything. We helped produce a lot of theater, festivals, and things of that nature so it was pretty all encompassing. We also did some artist management. We had musicians and actors, a couple of producers we worked with. Partnership-wise I have a couple I still work with.
Were you already considering retirement?
I never expected this to happen. I’d always told everybody that I’m never going to retire. They’ll find me passed out behind a road case on a tour somewhere and that will be the end of it. That was my story and I was going to just keep on keeping on and literally figured I’d die on stage or behind a case. But we won’t take on any new clients. I won’t be looking for new contracts or taking on any new spectacular projects.
Why have you decided to go public with your diagnosis?
I thought a lot about this in recent days. I looked at all the people I know or have heard about that have this same thing I’m wrestling with and I think it’s important for people, particularly in our industry, to understand what it is or what it does. I meet on Wednesday night with a group of people. We go to a coffee shop or a Panera Bread and we talk. It’s led by a young girl who is deaf and she teaches those of us who need refreshers on sign language and those of us who don’t know it. She can communicate in American Sign Language and Japanese Sign Language and other international languages. We sit around and talk with our hands.
Everybody gets excited and talks about what they like to do, what their hobbies are. A couple of weeks ago the main topic was “What is your favorite activity?” And when it came around to me the first thing I would normally have said was “listening to music.” And I had to stop myself because that won’t be my favorite thing to do before too long. So I went to my second favorite thing to do and signed it “cooking” because I don’t have to hear to cook. But it really stopped me in my tracks. Soon I’m going to be deaf. I know that it’s coming. It could be next week, next month or next year. I don’t know when. Music has been a part of my life for so long, and it’s been part of our lives for so long, and we don’t think about it until it’s not around sometimes. You play so much of your life into it. You can hear a song on the radio and immediately think of things you’ve done, places you’ve been and people you’ve been with. By almost every song you hear. How do you replace that? Even when I am experiencing those moments when I can’t hear anything, I still can hear those songs in my head. I can remember them. I hopefully can always have that memory.
Do you think industry professionals take the ability to hear for granted?
If there were some way that I can reach out to the industry and make them understand that importance, to get us to stop arguing over a deal or screwing each other over a dollar! Think a little while about the importance of these things. What can I do? Can I start a foundation? Can I start a movement? Can I start an awareness campaign? Can I start something now that I can’t do what I used to, to bring an awareness to people I worked with, in a different way that sheds light on this disease and this hardship, so that we think about the music, the entertainment, differently than we normally do? An actor can go onstage and use sign language and express themselves, because you are emoting with your body.
I don’t know how you do that with music because it’s inside. I have an invisible disease where, if you look at me you don’t know anything is wrong except maybe that I walk a little screwy sometimes. Until you talk to me, you don’t know that I’m any different than I ever was. What can I do to get others like me, the Ryan Adamses or the Kristin Chenoweths, who are in our business that feel the same way, to bring them together; people who have perfectly good hearing but who care?
There’s industry focus on protecting hearing from high decibel levels. Is Meniere’s related?
Meniere’s can happen to anybody and they don’t know that any one thing causes it because there’s so many different things. It can go through remission and exacerbation with so many different effects. It’s very episodic. I don’t know that being in loud music would trigger an attack.
If it can be unrelated, could people be ignoring Meniere’s symptoms mistakenly thinking its “just” ringing in the ears?
I know people in the business who have ringing in the ears all the time, and they say, “Oh, it’s because I never wore earplugs.” But it should be checked. Any time you have ringing in your ears it’s because your ears are in pain. People don’t understand that.
By talking about it publicly, you are certainly helping raise awareness of Meniere’s disease.
I can only do so much. My hearing is fluctuating quicker than it used to. I’m wearing a headset or I wouldn’t be able to hear you right now. I was out walking my dogs this morning and something just clicked and I couldn’t hear anything. In the 10 minutes, by the time I got home, it had gradually come back. I was just out walking the dog. We in this business have tended to rely, and we relied for so many years, on relationships.
That kind of changed over the years, more recently. Relationships don’t mean quite as much as they used to. We aren’t in control of our own destinies like we thought we were at one time. Maybe this was a way to wake up. Wake up to what, I don’t know. I just hope I can maybe make a difference, to get people to understand this disease and what it means.
An Open Letter From Jeffrey Bowen
Jeffrey Bowen emailed Pollstar in the days after the interview and asked us to include a note of thanks to his friends and colleagues. We’re happy to oblige:
These are friends in the “business” who have always been there to listen, guide, mentor, or just keep me straight when I needed to be. There are too many “building guys” to even begin to mention but a few do stand out such as Bob Klaus, Bucky Dame, Rick Fuson and Mike Crum who gave me tremendous opportunities in my career, and Steve Kirsner, John Mazzola, and Jim McCue who always knew the right things to say when times were tough.
I actually had some tremendous relationships with agents, no matter what some people think about them (that’s a joke by the way), guys like Kenny DiCamillo, Rob Light, Scott Pang, Steve Lassiter, Mitch Rose, James Yelich, have put up with my crazy offers and constant, neverending inquiries about their wonderful artists for many years.
I’ve come to love each of them, especially Rob Light’s annual Holiday card! And believe it or not I have a few artist managers that I can call friends too such as Irving Azoff and Howard Rose. They will probably never admit it but I am happy to. And foremost in that area is Harry Sandler. I’ve come to know, love and appreciate Harry’s creative soul over the past few years through his photography. Harry Sandler is a wonderful artist himself! Then there are the promoters.
Those with whom I competed against, partnered with, and sought to sell my soul to. And in doing so became great and steadfast friends: Ben Farrell, Paul Gongaware, John Meglen, Wilson Howard, Don King, Carlos Larraz, Louis Messina, Jerry Mickelson, Arny Granat, Steve Sybesma, and Dave Lucas.
Others such as Alex Hodges, Steve Moore and Mike McGee have been great mentors in my live. Producers/promoters such as Joe Thomas, Robin Mishik-Jett, and Neil Greenberg have been wonderful partners. I won’t start naming the artists that have touched my life; there are too many to name over the years. I’ll just place a bit of optimism here in honor of all of them as given to me by my dear departed friend, Red Skelton: “Never judge a day by its weather.”
Take it to heart my friends. The media has been kind to me all my life. I’ve never received a bad review, which isn’t to say I didn’t deserve my share from time to time, I’ve just been lucky. I haven’t received many honors and awards in my career, but the greatest reward I can walk away with is friendship.
Thank you to my wife, Holly, for putting up with those long hours without me around, and to my daughter, Savvy for having show business forced upon her. To my sons Christopher and Sean, I’m sorry I wasn’t there much when you were growing up. I love you all. I love almost everyone in the business. Thank you to everyone who made me what I was and ever could be. And thank you Pollstar. See you backstage sometime.
Now I hear what you hear
Learning to accept being hard of hearing is the hard part
I’ve got a secret. Just between you and me, I’ve been hard of hearing for many, many years. Procrastinating, postponing, delaying … that’s been me.
I’ve belonged to the Canadian Hard of Hearing Association for more than 20 years, but have never worn a hearing aid. Don’t get me wrong, I definitely have hearing loss. In fact, the hearing in my left ear is extremely poor. How did it happen? I’m not sure. As a child, I took a bad fall in an acrobatic class, maybe it was then. When I was 19 my family doctor discovered I had minimal hearing loss in my right ear. At that age, who cares? I was invincible or so I thought.
In my 20s I developed Meniere’s disease (inner ear dizzy spells), which I wouldn’t wish on my worst enemy. It would go in and out of remission and I survived, with the support of my family. Time marched on. One day I was on the phone at work and all of a sudden, I couldn’t hear out of my left ear. The hearing returned for a short while and then it was gone, never to return. It was then I learned Meniere’s could travel. I was now bilateral. And to keep life interesting, I’d also developed tinnitus (ringing in the ear), too.
Anyone with Meniere’s will understand my frustration. It was during this time I searched for a support group and found the Canadian Hard of Hearing Association. CHHA became my lifeline and sustenance. I became involved, gradually holding a number of positions, but what I found important was being able to help others with hearing loss, albeit in some small way.
More than a year ago my audiologist told me it was time for a hearing aid. These were busy times with many other things to do and I kept putting it off. This past year I began to require captioning while watching TV. One evening I was shocked while attending a local historical meeting. I could not hear or understand a single word spoken by the president or guest speaker. My astonishment was monumental! I was OK talking one-on-one, but totally confused in group conversations.
It was time to act. I went for my annual hearing test and had a mould made for an hearing aid. It takes some time to become accustomed to a hearing aid, but if others can do it, I certainly can, too. It will do me no good sitting in a drawer. Recently, I’ve learned by not wearing your hearing aids regularly (which I’ve been guilty of) the hearing nerve is not being continually stimulated and it will die. It is just like a muscle and will atrophy.
Wearing my brand new hearing aid I attended the CHHA national conference in Toronto this May. I realize it is selective perception, but couldn’t get over it that virtually everyone in attendance was wearing either a hearing aid or a cochlear implant.
What I find interesting, when I put my hearing aid on in the morning in the bedroom, I can hear the radio in the bathroom. I store it in the bedroom because washroom dampness and hair spray are definitely not good for a hearing aid.
I wear a behind the ear model basically because my ear canal is too small for in the ear styles. Initially, I thought everyone would see and notice I was wearing a hearing aid. Actually, it is not very noticeable unless you’re paying close attention and it’s a similar colour to my hair.
Recently we attended a function and I meant to put a new battery in my aid prior to leaving. Well, I was busy and didn’t get around to it. You guessed it, the battery died while we were out. Everyone around me sounded muted and muffled. I’ve learned my lesson. In future I will replace my battery at home or at least carry extras.
Life is full of future expectations. One event I’m really looking forward to is the Canadian Hard of Hearing Association’s meeting Dec. 3. It is called Deafened But Not Silent … Music & Hearing Loss. Speaker Peter Stelmacovich wears a hearing aid in one ear, a cochlear implant in the other, is an audiologist and plays guitar in a band. How cool is that?
So, my secret is out, I’m definitely enjoying (while not perfect, but) improved hearing.
Jacquie Reid lives in Hamilton. She is the newsletter editor for the Canadian Hard of Hearing Association (Hamilton branch) http://www.chha-hamilton.ca/chha-hamilton.
Managing Meniere’s disease can feel like an uphill battle.
It gets so complicated and confusing. Everyone is affected differently and what works for some people, may not work very well for you. I know how frustrating it can be.
But it’s important to figure out what’s triggering your symptoms, and journaling can help. It’s just hard to know what to keep track of…
Introducing the Mind over Meniere’s Symptom Trigger Tool!
When you have all the right information in front of you, it’s much easier to figure out exactly what is triggering your symptoms.
So I have created a simple and effective FREE tool that will help you:
- Identify your triggers
- Accurately report back to your doctor
- Help you get your symptoms under control
The Symptom Trigger Tool is a one page journal template PDF that will help you keep track of all of the important information you need to identify your Meniere’s disease triggers.
It can be filled out on the computer or printed, and filled out by hand.
The Symptom Trigger Tool Keeps Track of:
- Daily Weather
- Medications and Supplements
- Vertigo Attacks
Get your FREE copy of the Mind Over Meniere’s Symptom Trigger Tool!
Let me know where to send it below:
September is balance awareness month. Please help spread the word of Vestibular disorders and the Vestibular Association so patients can continue getting help and support. If you copy and paste the following link , you can look at my link, my story and find out why it is so important to me.
Click and paste on the link to donate.
Thank you Kelly
Local doctor fighting fibromyalgia
New sleep study aims to reduce most common symptoms for affected patients
SouthCoast Health’s Dr. Victor Rosenfeld’s recently published a sleep study that simplifies the diagnosis for fibromyalgia, could improve pain and stress as well as address the lack of sleep in patients affected by the syndrome.
Rosenfeld, head of the neurology department and medical director at SouthCoast Health, had his study published in the Journal of Clinical Neurophysiology’s April 2015 edition.
Rosenfeld tested nearly 500 patients with and without fibromyalgia in a sleep lab. While the patients slept, Rosenfeld observed their brain waves through a process known as quantitative EEG and utilized the process to monitor the patients’ alpha waves.
The brain creates alpha waves while it is awake, Rosenfeld said. He detected alpha waves in the vast majority of fibromyalgia patients but did not in those without fibromyalgia.
“Even though people with fibromyalgia are technically asleep, their brain waves look more like they’re awake,” Rosenfeld said. “In essence, people with fibromyalgia are pulling an all-nighter every single night.”
Such a finding explains why most fibromyalgia patients often report feeling tired, fatigued, achy and unfocused, he said.
Fibromyalgia is the most common widespread pain syndrome in the world, and it affects between 2 and 6 percent of the population. Women are eight times more likely to develop fibromyalgia than men, according to Rosenfeld. Fibromyalgia’s cost to the U.S. economy is estimated at $10 billion annually.
Rosenfeld’s study has the potential to reduce that figure by eliminating unnecessary testing for the condition.
There is no specific test for fibromyalgia, so it’s not uncommon for patients to visit with cardiologists, gastroenterologists and rheumatologists before they get a proper diagnosis.
“Fibromyalgia patients have a bewildering array of symptoms, so they’ll typically go see many types of doctors,” Rosenfeld said. “Now we can easily and quickly identify the condition and save millions of dollars potentially from wasted time and diagnoses.”
The sleep study is widely available. Its easy accessibility allows patients to receive a quick diagnosis and to get started on a treatment plan that addresses their symptoms.
Since there’s no known cure for fibromyalgia, reducing pain levels in patients is important, Rosenfeld said. Exercise, especially aquatic therapies, as well as improving one’s diet helps reduce symptoms.
Above all, improving patients’ sleep is at the top of the agenda.
“Focusing on the patients’ sleep and helping their sleep is probably one of the most important things that we can do,” Rosenfeld said.
Rosenfeld published the study, which is titled as “Polysomnography With Quantitative EEG in Patients With and Without Fibromyalgia,” alongside co-authors Dana N. Rutledge, a nursing professor at California State-Fullerton, and Dr. John M. Stern, director of the Epilepsy Clinical Program at UCLA’s David Geffen School of Medicine.
Rosenfeld, head of the neurology, is board certified in neurology and sleep medicine and has been published in several medical publications on topics such as sleep medicine, Huntington’s disease and sleep apnea.
I have fibromyalgia and it is awful, fatigue, brain fog, body pain, The only exercise, I found that doesn’t hurt me as bad as others is swimming. But I still pay for it the next day. I always pay the next day for any extra activity. I have found taking a warm bath helps before bed, 3 ft heating pad. Sometimes I have to elevate my legs others I don’t . I have learned to learn my limits, and becareful not to do to much. I can’t find any triggers accept stress, lack of sleep and doing to much. I can’t find anything in my diet accept I must keep my protein intake up. Anyways if anyone has any ideas on how to help ease their symptoms, let’s talk.
The intent of this site is to help others through sharing information. Kelly Helsel does not endorse or intend to mislead any readers as to the content of any articles or books on this site.