Tag Archives: awareness

Of Mindful Manner

This site crossed my paths and I knew it was one to be shared, I already have purchased two shirts to help support this site, it’s real, its helpful and fits in with my page, I just love the energy these women Cassidy and Savannah have and I am sure you will love there site, check it out, tell your story and lets help get the word out about Invisible Illnesses and rare diseases. There are more out there than you know, knowledge is the key, awareness is the cure and support gives us the want to continue to fight. Check it out.
Our Story
Of Mindful Manner was born out of a need to better represent the individuals of the world who show no outward signs of their illness. Coping with an invisible illness can be frustrating and painful, but these issues are compounded by a lack of knowledge and understanding. Our reason for being is to help enlighten and encourage our friends, families, neighbors, and co-workers to address individuals with empathy and understanding. At Of Mindful Manner we know that what you see is not always what you get, and because of that, each garment is carefully curated to serve as an invitation for conversation. The more conversation that surrounds invisible illness, the less room there is for stigmas, ignorance and misunderstanding.

We want you to know that we see you and we recognize the battle you are facing. There is a whole community at Of Mindful Manner that supports you.

The Founders
Hello, Cassidy & Savannah here! We are so thrilled you have found your way to our shop. We are sisters who have had our lives tremendously impacted by invisible illness. One of us has Dysautonomia and Chronic Migraines. The other one of us has grown up with a front row seat to living with these conditions, and has shared in the burdens they can cause. That’s the thing about invisible illnesses though.. you can’t tell by looking at us, which one of us fits which description.
We know our story is not unique. Nearly half of the U.S. population lives with some sort of chronic illness and 96% of chronic conditions are invisible. So while you may not suffer from an invisible illness yourself, chances are you know one or several family members/friends or co-workers that do. We pray the future holds cures for everyone, but in the meantime we will dedicate our lives to spreading awareness in hopes of making this world a more mindful one.
Search Returns Shipping Contact Us Blog. WWW.ofmindfulmanner, link located on the left hand side of page, bring ya right to it. Kelly

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Are you proud of your illness? Crazy question!

A man texted me on Instagram and said what illness do you have? I answered, he actually said to me “are you proud of my illness” You make it come across that way, I was upset, shocked but the text got me thinking after blocking him is How could the title of a illness make someone believe you are proud of your illness. The saddest thing is we really are not proud, a lot of aspects can be embarrassing, I want to be healthy, help others and if you don’t hear me crying through your text, what you need to understand, we are alone, we cry alone, we don’t want to bother anyone, and if you cry, your weak or family reads you are suicidal. I do cry but not to others, I pray God will help me find a cure, I know there is a purpose, but unlike other diseases, we don’t have ribbons, pins, t shirts, parades, fundraisers, Everything when you tell your illness to someone, you get the sad face or the look of your going to die. or everyone has a magic pill or shake that will cure you, I even wrote to John of God with my illness and my photo. I received a bottle of something, but I couldn’t take something that there isn’t a list of what is in it. I know people who have had invisible surgeries? they will buy every supplement that are promised to cure them. I look at it is If it cures everything, why aren’t disease being cured. Living with a disease that has taken your life away from joy, working, family, friends, financially cost so much on copays and hospital stays, then there are the mistakes which I don’t believe in suing but I believe If the error was done unintentionally than I need to let then know so they can learn and also write a heart felt letter letting them know. That I am not a disease, I am a mother, daughter, sister, friend and its for these reasons I am letting them know. I am human, not a chart or Medical record number. Not to put anyone down, to educate them. Never once to this day have I gotten a phone call or letter of apology even knowing I had a good case to sue them. So when someone asks me am I proud of my illness, I can say no, Never and wouldn’t wish this is on anyone. Sometimes I wonder what I did or why me, then I realize Why not me! What is my lesson, what is my purpose and that is why I help so many others. My dream Is a cure that may not ever come, but I still would like to live my life and pursue my photography so I can donate to non profits. But with that comes something you can go in he hills with. Like a ATV not even knew, just safe and runs. but on disability you don’t have extra money for stuff, I cut my own hair, do my own nails, clean my own house, 1 room a day or I can’t walk the next day. So when people say you look healthy you must be recovery, It’s the mask. The mask of feeling well, It takes me a couple hours to get ready for occasion and then I pay for days. There are people out there far sicker than I but I don’t have a cure, that takes the hope away. And as simple as a ATV or lunch on a outside patio seems so little to others, they are dreams for others who just want to live with the simple things to make our life a little easier, more pleasant with more enjoyment, not a trip t Disney land, or Europe just the simple things.

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How many children have to die from diabetes type 1 before it becomes a issue we take seriously!

How Many Children’s Death Need to Happen??????
Posted on March 29, 2016

Tombstone Care HarderI’m not exactly sure why this is such a problem; I mean I really am unsure. Do we need a celebrity’s child to be stricken to bring awareness? Is not the amount of death and illness that has happened not enough? I’m dumbfounded that the death of even one child, which was absolutely preventable, is not considered ‘enough’ to try to fix this situation.

Recalls, choking pieces, negligence leading to harm…….the world becomes up in arms over so many things when they know the situation can be changed. Why is not missing the diagnosis of type one diabetes (T1D) included.

In my Town Hall Survey, (taken last August) let’s just say the information is not exact science but is it not surely enough to take notice? Over half of the 500+ respondents who were in diabetic ketoacidosis when diagnosed had been to a medical professional prior to being hospitalized and the diagnosis was missed. Four children had brain damage and five children died.

Why is that not enough?

In a subset of any kind of population under examination; almost 2% ending up brain-damaged or dead is not enough to delve further? Okay, I admit it, I am not statistician expert; it’s possible the stats are not completely scientific….prove me wrong? Prove me wrong that this is not a problem and I will shut up and go away.

But I have hugged parents who have lost their child to a T1D diagnosis being missed, explain to them that it’s not important enough to figure out what to do. Imagine if it were your child….what would you do to change it? Illness, Brain damaged or death just because someone did NOT THINK to do a finger prick or a urine test. Seriously?

What will it take…….what will you do? I’m just so hard pressed to think that if a legislator; or a president of a major diabetes company/organization/entity; or a celebrity lost their child due to undiagnosed type 1 diabetes……the response would be so cool in nature on trying to make a difference as it seems to be; “Not my problem, why care?”

We all need to “care, harder”.

Well I’m sorry that many of the kids who died, or were injured, or ended up hospitalized due to someone not ruling out type one diabetes were all just regular kids and not the kids of people who HAVE THE ACTUAL POWER TO STOP SOMETHING SO AVOIDABLE.

But they were kids who were somebody’s entire world, and now they are gone. Please tell me, why are their silenced voices not enough. Why does no one hear those children’s cry for chang

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