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Just what is a invisible illness?

What are Invisible Disabilities?
Invisible Disability, or hidden disability, is an umbrella term that captures a whole spectrum of hidden disabilities or challenges that are primarily neurological in nature. Invisible disability, or hidden disability, are defined as disabilities that are not immediately apparent. Some people with visual or auditory disabilities who do not wear glasses or hearing aids, or discreet hearing aids, may not be obviously disabled. Some people who have vision loss may wear contacts. A sitting disability is another category of invisible impairments; sitting problems are usually caused by chronic back pain. Those with joint problems or chronic pain may not use mobility aids on some days, or at all. Although the disability creates a challenge for the person who has it, the reality of the disability can be difficult for others to recognize or acknowledge. Others may not understand the cause of the problem, if they cannot see evidence of it in a visible way.
People with some kinds of invisible disabilities, such as chronic pain or some kind of sleep disorder, are often accused of faking or imagining their disabilities. These symptoms can occur due to chronic illness, chronic pain, injury, birth disorders, etc. and are not always obvious to the onlooker.
Invisible Disabilities are certain kinds of disabilities that are not immediately apparent to others. It is estimated that 10% of people in the U.S. have a medical condition which could be considered a type of invisible disability.
Nearly one in two people in the U.S. has a chronic medical condition of one kind or another, but most of these people are not considered to be disabled, as their medical conditions do not impair their normal everyday activities. These people do not use an assistive device and most look and act perfectly healthy.
According to the Americans with Disabilities Act of 1990 (ADA) an individual with a disability is a person who: Has a physical or mental impairment that substantially limits one or more major life activities; has a record of such an impairment; or is regarded as having such an impairment.
About This Image: Woman with migraine sitting on a bed holding a white mug with her head resting on her hands and knees.
Generally seeing a person in a wheelchair, wearing a hearing aid, or carrying a white cane tells us a person may be disabled. But what about invisible disabilities that make daily living a bit more difficult for many people worldwide
Invisible disabilities can include chronic illnesses such as renal failure, diabetes, and sleep disorders if those diseases significantly impair normal activities of daily living.
For example there are people with visual or auditory impairments who do not wear hearing aids or eye glasses so they may not seem to be obviously impaired. Those with joint conditions or problems who suffer chronic pain may not use any type of mobility aids on good days, or ever.
Another example is Fibromyalgia which is now understood to be the most common cause of chronic musculoskeletal pain. Sources estimate between 3 and 26 million Americans suffer from this hidden condition.
Other Types of Invisible Disabilities
Chronic Pain: A variety of conditions may cause chronic pain. A few of those reasons may be back problems, bone disease, physical injuries, and any number of other reasons. Chronic pain may not be noticeable to people who do not understand the victims specific medical condition.
Chronic Fatigue: This type of disability refers to an individual who constantly feels tired. This can be extremely debilitating and affect every aspect of a persons every day life.
Mental Illness: There are many mental illnesses that do qualify for disability benefits. Some examples are depression, attention deficit disorder, schizophrenia, agoraphobia, and many others. These diseases can also be completely debilitating to the victim, and can make performing everyday tasks extremely difficult, if not impossible.
Chronic Dizziness: Often associated with problems of the inner ear, chronic dizziness can lead to impairment when walking, driving, working, sleeping, and other common tasks.
People with psychiatric disabilities make up a large segment of the invisibly-disabled population covered under the Americans with Disabilities Act of 1990.
Invisible disabilities can also include chronic illnesses such as renal failure, diabetes, and sleep disorders if those diseases significantly impair normal activities of daily living. If a medical condition does not impair normal activities, then it is not considered a disability.
96% of people with chronic medical conditions live with an illness that is invisible.
Many people living with a hidden physical disability or mental challenge are still able to be active in their hobbies, work and be active in sports. On the other hand, some struggle just to get through their day at work and some cannot work at all.

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What exactly is POTS!!!!!!!

WHAT IS POTS?

Dysautonomia is an umbrella-term used to define conditions caused by a malfunctioning autonomic nervous system. Postural Orthostatic Tachycardia Syndrome (POTS) is a form of Dysautonomia. POTS is most often seen in women of child-bearing age but can and does affect people of all different ages, genders, and races. Just like all chronic illnesses, the degree of severity can range from mild to completely disabling. Approximately 25% of patients with POTS cannot work, go to school, or keep up with daily tasks due to their condition. The autonomic nervous system is responsible for every bodily function you do not have to think about at this very moment. You do not have to tell your heart to beat, nor do you have to instruct your lungs to inhale or exhale, as both are done automatically. With POTS, there is dysfunction with these automatic functions. The autonomic nervous system is responsible for so many bodily functions which is why no two patients with POTS are ever exactly the same.

The symptoms seen in POTS can vary greatly but an increase in 30+ bpm (40+ in adolescents), or a HR that goes above 120bpm, within the first 10 minutes of standing is seen in all patients. This increase in heart rate is responsible for the “T” in POTS: Tachycardia. Tachycardia is defined as an abnormally high heart rate. The average resting heart rate is anywhere from 60-90 (some athletes experience bradycardia, or low heart rate). This average resting heart rate would remain the same when going from sitting to standing in a healthy individual, or would change slightly. With POTS, the heart rate increases as the body’s way of trying to compensate for the blood that is starting to pool in the lower extremities. Our heart rates increase to try to work extra hard to pump our blood back to our heads, with little success.

This increase in heart rate is diagnostic criteria for POTS and is seen with or without a decrease in blood pressure. It is a common myth that patients with POTS always have low blood pressure but that’s not accurate. In fact, the increase in heart rate can be accompanied with a stable blood pressure, a drop in blood pressure, or even an increase in blood pressure. Orthostatic hypotension is a different form of Dysautonomia in which the blood pressure drops when standing but the heart rate remains the same.

Although POTS is often characterized as a fainting disorder, it can more accurately be described as a presyncope (the feeling of lightheadedness, dizziness, and confusion experienced right before one faints) condition. In fact, fainting and a decrease in blood pressure are not diagnostic criteria for POTS.
POTS was termed in 1993 but several medical and historical documents describe patients with POTS symptoms under different diagnoses including “soldier’s heart.” Current research is suggesting that POTS is an autoimmune condition. An autoimmune condition means that the body’s immune system is attacking the body itself instead of intruding threats. More research is necessary in order to understand more about POTS and eventually find a cure!

For me personally, I have experienced all the symptoms, but first started with Vertigo and ear pain, hearing loss, visual changes, dizziness, nausea vomiting, Took 57 Dr’s to correctly diagnose me correctly, Started with autoimmune disease of the ear, then it seemed it snow balled out of control as if the autoimmune disease was attacking my Brain and then my body. I had Chemo with zero results and IVIG which is intravenous immunoglobulin for 9 months 5 days a week 7 hours a day. Didn’t work! So as of now there is no cure just symptom control.

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