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What is Cystic Fibrosis?

Cystic Fibrosis is a inherited disorder that causes severe damage to the lungs, digestive system and other organs in the body,

The disorder the cells the produce mucus, sweat and digestive juices. These secreted fluids are normally thin and slippery, but people with cystic fibrosis, a defective gene causes, the secretions to become sticky and thick. instead of acting like a lubricant the secretions plug up tubes, ducts and passageways in the lungs and pancreas.

This disorder requires daily care, most patients can attend school, work and have a better quality of life than they would have decades ago.

Screening newborns for cystic fibrosis is now performed in every state in the United States.

People with cystic fibrosis have a higher than normal level of salt in their sweat, Adult diagnosed with cystic fibrosis are more likely to have atypical symptoms such as recurring bouts of inflamed pancreas (pancreatitis) infertility and recurring pneumonia.

Some symptoms are a persistent cough that produces this mucus, Wheezing, Breathlessness, Exercise intolerance, repeated lung infections, inflamed nasal passages or a stuffy nose.

Digestive symptoms are foul-smelling greasy stools, Poor weight gain and growth, intestinal blockage, severe constipation.

Cause is heredity, most likely Northern European Ancestry.

Complications of this disorder, Damaged airways, chronic infections, growths of polyps in the nose, coughing up blood, pneumothorax, respitory failure, acute exacerbations, Nutritional deficiencies, Diabetes, Blocked bile duct, intestinal obstruction, Distal intestinal obstruction syndrome , Osteopororis, electrolyte imbalance and dehydration.

There is a new product invented by Marten Devlieger and the Vest invented allows patients with Cystic Fibrosis to retrieve treatment on the go. @thecfsorceress, www.hill-rom.com Name of Vest is the Monarch.

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One man’s journey with cystic fibrosis !!!!!!!!!!

Marten’s journey with Cystic fibrosis and how he is helping others live better with their disease.

Marten lives life to the fullest and wants others to do the same. He was so empowered by his love for life and wanting to do all the things he enjoyed, but one problem, he had to stop for treatments, This being said Marten invented the Monarch. A portable vest that allows Marten and others to go on there adventures and be able to give them selves treatment portably. What a gift not only to him self but to other CF patients. It had allowed him the freedom to live his life to the fullest. The Monarch information can be received at @thecfsorceress www.hill-rom.com

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