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Enough is Enough

As the list of my illnesses continue to grow, I question the motivation behind all of these test, I am a very compliant patient, but there comes time when you say Enough is Enough, After having the smart pill test and diagnosed with gastroporesis. My pain continues to hurt so bad on my rib cage due to the gastritis and esophagitis and the pain is radiating through my ribs so bad I thought I was having a heart attack. So I go get checked. No Heart attack thank god, But the ER Doctor said to me you keep coming in and we can’t help you why isn’t anybody getting down to the bottom of this. So with that being said, still no food, continuous heart burn and rib pain and I had to even take pain meds which I don’t do. I tried heating pads, everything, So the GI Doctor says he wants to order two more invasive tests, So I asked why am I doing another radioactive test on my digest system when the first test was fine and I would have to go off my meds again the only thing allowing me to even eat a little shake, then have a tube down my nose into my stomach to measure the ph balance. Going off my meds again. I thought about it and I decided no more tests, every test makes me worse. So If Stanford can’t go by the past tests then I will attempt the test but I have had enough.  I know Dr’s offices make money off of test being done in their offices and I know that’s a huge influence, but, it’s making me worse.  I called my ENT and told him I am going to come see him to check in to be compliant but no hearing tests.  Going into the little box for the testing causes so much pressure in my head it throws my vertigo beyond and ear pain.   Enough is Enough and for each patient that will be different.  For me 10 years and it’s enough, I continue my meds but cut some in half for less effects.  I won’t tell the Dr’s because then you are non compliant but I am extremely sensitive, so I have to do what is right for me.  If your feeling that same feeling, Stand up for yourself, listen to your gut and follow it.  Just remember you can always reschedule the test if you change your mind or increase your meds to original prescription, you have to listen to your self.

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Should you be taking certain antibiotics?

I am writing this in hopes that you will educate yourself and your families. Don’t take that antibiotic in ignorance one more time. Don’t take your chances. Don’t be afraid to demand an alternative. You get only 1 life. I am convinced that a large portion of why God allowed this in my life, is so that I could use my loud mouth to educate you. To share the blessings and miracles He has given me throughout this journey and to be my obnoxious self for a cause that needs to be shouted from the rooftops. If you take a Fluoroquinolone by choice…please don’t tell me. It makes me have anxiety and it makes me worry about something I can’t control. Only you can control what goes in your body. When you tell me you take these antibiotics, it makes me feel physically ill. If you only understood the risk you are taking, you wouldn’t take it. Save the explanation. There are alternatives if you demand them. I’ve refused these medications on multiple occasions and so has my mom who is allergic to penicillins and Cephalosporins and Sulfa. There are other options if you demand them. If you don’t have Anthrax poisoning, or pseudomonas bacteria…my family doctor will tell you, they can figure something else out. I am going to share some trustworthy Fluoroquinolone warning links. If you look them up…I am sure you will be glad you did. Do it for yourself and do it for your friends and your family.

This is the FDA’s warning for Fluoroquinolone antibiotics:

http://www.fda.gov/Drugs/DrugSafety/PostmarketDrugSafetyInformationforPatientsandProviders/ucm126085.htm

This is the Department of Health and Human services warning for Cipro:

http://www.accessdata.fda.gov/drugsatfda_docs/appletter/2011/019537s075,019847s047,019857s054,020780s033,021473s028ltr.pdf

This is the New England Journal of Medicines’ article on “Achilles Tendinitis and Tendon Rupture Due to Fluoroquinolone Antibiotics”

http://www.nejm.org/doi/full/10.1056/NEJM199409153311116

The New York Times Popular Antibiotics May Carry Serious Side Effects

http://well.blogs.nytimes.com/2012/09/10/popular-antibiotics-may-carry-serious-side-effects/?_r=1

ResearchGate Musculoskeletal Complications of Fluoroquinolones: Guidelines and Precautions for Usage in the Athletic Population

https://www.researchgate.net/publication/49848217_Musculoskeletal_Complications_of_Fluoroquinolones_Guidelines_and_Precautions_for_Usage_in_the_Athletic_Population

Medscape Musculoskeletal Complications of Fluoroquinolones: Guidelines and Precautions for Usage in the Athletic Population

http://www.medscape.com/viewarticle/741802

The mitochondria targeted antioxidant MitoQ protects against fluoroquinolone-induced oxidative stress and mitochondrial membrane damage in human Achilles tendon cells

PubMed The mitochondria targeted antioxidant MitoQ protects against fluoroquinolone-induced oxidative stress and mitochondrial membrane damage in human Achilles tendon cells.

http://www.ncbi.nlm.nih.gov/pubmed/19235604

This is WebMDs’ warning about Cipro and similar antibiotics

http://www.webmd.com/osteoarthritis/news/20080708/fda-warning-cipro-may-rupture-tendons

This is Oxford Journals’ Fluoroquinolone-Associated Tendinopathy: A Critical Review of the Literature

http://cid.oxfordjournals.org/content/36/11/1404.full

This is Oxford Journals’ Electrochemical characteristics of five quinolone drags and their effect on DNA damage and repair in Escherichia coli

http://jac.oxfordjournals.org/content/25/5/733.abstract

NATA Journals’ Fluoroquinolones and Tendinopathy: A Guide for Athletes and Sports Clinicians and a Systematic Review of the Literature

http://natajournals.org/doi/pdf/10.4085/1062-6050-49.2.09

The Journal of Clinical and Aesthetic Dermatologys’ The Risk of Fluoroquinolone-induced Tendinopathy and Tendon Rupture: What Does The Clinician Need To Know?

http://www.jcadonline.com/the-risk-of-fluoroquinolone-induced-tendinopathy-and-tendon-rupture-what-does-the-clinician-need-to-know/

NCBIs’ The vasculature and it’s role in the damaged and healing tendon

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC128932/

Medication Senses’ New Warnings for Cipro, Levaquin, and other Quinolone Antibiotics

http://www.medicationsense.com/articles/may_aug_05/warning_antibiotics_052205.html

Over the last 7 years, I’ve been to 3 Rheumatologists, orthopedic surgeons and spine surgeons, physical therapists, physical medicine and rehab specialists and 3 different primary care doctors. There is no treatment but to try to put back together what breaks. I have seen multiple docs from Mayo clinic and they are in the same boat as the others. They don’t know how to reverse it. They can’t. The science is not there yet. I contacted a doctor from Mayo Clinic in Rochester Minnesota, his name was Jay Smith, and he had been part of a research study of the effects of Fluoroquinolones on the musculoskeletal system in the athletic population. He actually wrote me back when I asked him for a consult and told him I would even fly there for an appointment if he thought he could help me. He said that he didn’t know how to treat it. They know the science behind the damage that Fluoroquinolones cause, but the science is not there yet in how to reverse it. I will tell you this. I reached an incredibly low and dark place when he responded with this. You have to understand that I have had a miracle. God is what has gotten me through this and I can’t put the credit on anything else. The ministers at my church prayed for me with blessed oil. In the Bible it talks about this in James chapter 5. I had an incredible experience during that “administration.” My son was 8 years old at the time and he had a dream that night where God spoke to him and told him that “He was going to heal his mom, but we had to be patient.” This was 5 years ago. I am hiking mountains regularly now. My body still has many problems but my progress has been a miracle and all my surgeons and doctors will tell you the same. God is the great physician, and He alone is the answer. I did write a book about this and it will be coming out in the next 6 to 8 weeks. It’s called “The Magnificent Story of a Lame Author.” I have had countless blessings through this and the credit for the improvement is Gods.

We have to get this information out there. Spread it to everyone you know. Print the FDA warning and show it to your friends and family and even your doctors. Sometimes the warnings slip through the cracks and they don’t know. You could save their lives. Alright people, let’s make a positive difference!

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